상세정보
- 상세정보
Genomics and public health :
Knoppers, Bartha Maria
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- 도서 상세정보
| 자료유형 | 단행본 |
|---|---|
| 개인저자 | Knoppers, Bartha Maria. |
| 서명/저자사항 | Genomics and public health :legal and socio-ethical perspectives:edited by Bartha Maria Knoppers. |
| 발행사항 | Leiden;Boston :Martinus Nijhoff,c2007. |
| 형태사항 | xi, 329 p :ill. ;25cm. |
| ISBN | 9789004155596 (alk. paper) 9004155597 (alk. paper) |
| 서지주기 | Includes bibliographical references. |
| 일반주제명 | Genetic screening -- Law and legislation Genomics Genomics -- Moral and ethical aspects Public health |
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| No. | 등록번호 | 청구기호 | 소장처 | 도서상태 | 반납예정일 | 예약 | 서비스 |
|---|---|---|---|---|---|---|---|
| 1 | WM4789 | 344.041 G335k | 인권도서관/인권도서관/ | 대출가능 |
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목차 일부
pt. I. Population screening
issues, realities and possibilities. Introduction
expansion of screening / J. Gerard Loeber ; Expansion of newborn screening
current achievements and new prospects / ...
issues, realities and possibilities. Introduction
expansion of screening / J. Gerard Loeber ; Expansion of newborn screening
current achievements and new prospects / ...
목차 전체
pt. I. Population screening
issues, realities and possibilities. Introduction
expansion of screening / J. Gerard Loeber ; Expansion of newborn screening
current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility
what's the harm? / Nikki Kerruish ; Newborn screening expansion
Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening
a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection
lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns
should it be discovered?
should it be disclosed?
lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction
newborn screening
storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research
revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday
pt. II. Balancing interests in public health genomics. Introduction
of genomics and public health
building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics - the public health perspective on genome-based knowledge and technologies / Angela Brand
pt. III. Genomics and public health
current approaches and future perspectives. Introduction
the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice
international policy implications / Stuart Hogarth ; GRaPH Int
an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue
an analysis of two projects / Hubert Doucet ... [et al.] ; Meeting of minds
a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics
engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin.
issues, realities and possibilities. Introduction
expansion of screening / J. Gerard Loeber ; Expansion of newborn screening
current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility
what's the harm? / Nikki Kerruish ; Newborn screening expansion
Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening
a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection
lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns
should it be discovered?
should it be disclosed?
lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction
newborn screening
storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research
revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday
pt. II. Balancing interests in public health genomics. Introduction
of genomics and public health
building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics - the public health perspective on genome-based knowledge and technologies / Angela Brand
pt. III. Genomics and public health
current approaches and future perspectives. Introduction
the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice
international policy implications / Stuart Hogarth ; GRaPH Int
an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue
an analysis of two projects / Hubert Doucet ... [et al.] ; Meeting of minds
a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics
engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin.
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