CHAPTER 1 INTRODUCTION =1
CHAPTER 2 GENERAL ISSUES CONCERNING GENETIC INFORMATION - JANNEKE GERARDS =5
1. Introduction =5
2. Genetics exceptionalism and the definition of genetic information =5
3. Interests involved in protection of genetic information =12
4. Regulating genetic information: general issues =19
5. Conclusion =26
CHAPTER 3 INTERNATIONAL AND NATIONAL LEGAL INSTRUMENTS - AALT-WILLEM HERINGA =27
1. Introduction =27
2. Global standard setting =28
3. European provisions: Council of Europe and EU =31
4. Findings =45
CHAPTER 4 GENETIC INFORMATION IN EUROPEAN STATES - HELEEN JANSSEN =47
1. Introduction =47
2. Elaboration of genetic privacy and genetic discrimination =53
3. The legal systems =59
4. Overview and conclusions =91
CHAPTER 5 REGULATION OF GENETIC INFORMATION IN THE UNITED STATES - JANNEKE GERARDS =105
1. Introduction =105
2. Particularities of the American system =107
3. Federal legislation relating to genetic discrimination and privacy in the field of employment and insurance =153
4. Proposed federal legislation =189
5. Conclusion =207
CHAPTER 6 CONCLUSIONS - JANNEKE GERARDS =221
1. Introduction =221
2. Genetic and other health information; definition of genetic information =223
3. Regulating genetic information =227
CHAPTER 2 GENERAL ISSUES CONCERNING GENETIC INFORMATION - JANNEKE GERARDS =5
1. Introduction =5
2. Genetics exceptionalism and the definition of genetic information =5
3. Interests involved in protection of genetic information =12
4. Regulating genetic information: general issues =19
5. Conclusion =26
CHAPTER 3 INTERNATIONAL AND NATIONAL LEGAL INSTRUMENTS - AALT-WILLEM HERINGA =27
1. Introduction =27
2. Global standard setting =28
3. European provisions: Council of Europe and EU =31
4. Findings =45
CHAPTER 4 GENETIC INFORMATION IN EUROPEAN STATES - HELEEN JANSSEN =47
1. Introduction =47
2. Elaboration of genetic privacy and genetic discrimination =53
3. The legal systems =59
4. Overview and conclusions =91
CHAPTER 5 REGULATION OF GENETIC INFORMATION IN THE UNITED STATES - JANNEKE GERARDS =105
1. Introduction =105
2. Particularities of the American system =107
3. Federal legislation relating to genetic discrimination and privacy in the field of employment and insurance =153
4. Proposed federal legislation =189
5. Conclusion =207
CHAPTER 6 CONCLUSIONS - JANNEKE GERARDS =221
1. Introduction =221
2. Genetic and other health information; definition of genetic information =223
3. Regulating genetic information =227